What our life looks like right now

I wanted to give an idea on what our daily life looks like now that Jordan is home and after our meeting with the Liver Specialist.

Jordan is still in a lot of pain. He is taking 7 different pills a day, some twice a day for various reasons. They didn't give him anything for the pain. The pill that reduces pressure in the abdomen and the pill that coats the stomach lining will most likely be medication that he will be on for awhile.

Because of all the pressure in his abdomen eating is uncomfortable. He will be really hungry and about half way through his meal he will get the feeling that if he eats one more bite he will throw up. So he eats small meals throughout the day and snacks on things like Jell-O, popsicles, and sour candy. Apparently the same taste buds on your tongue that register salty tastes do the same with sour tastes. So in a sense eating sour candy satisfies that salty itch.

He is drinking lots of caffeine free Pepsi, protein shakes and fruit smoothies. Right now Jordan is on a low sodium diet with an emphasis on protein intake. It’s amazing what foods have low sodium that we didn’t realize. We are still getting a handle on what our diet can consist of. We are reading lots of labels on food and grocery shopping takes twice as long.

The pill for the portal hypertension, which helps reduce the pressure in his belly, makes him dizzy and disoriented. There will be times were 5 minutes will pass and he won’t be able to recall what happened during that time. It takes longer to form thoughts and harder to focus on simple tasks. Because of this he has not driven since taking himself to the ER.

Sleeping is becoming a problem again. He cannot fall asleep until around 4-5am and will have restless sleep until about 12-1pm. He will just lie in bed wishing for sleep to come. During his next meeting with the Primary Care Doctor he will be asking for a prescribed sleep aid.

He is getting out the house and walking around to get exercise. Today we volunteered at the Indiana State Fair Grounds with the agency that we adopted our greyhound from, Greyhound Pets of America, at the Flower and Patio Show. We took Tommen down there and talked to people about greyhounds. It was a good time and nice to get out of the house for a few hours. But it did wear Jordan out. That’s about all he can handle at this point. No strenuous activity, just walking and interacting.

Jordan will continue to work from home by doing paperwork for his dad’s business, which we are very thankful for. We will be reevaluating our financial situation once we start receiving bills from IU Health and make a plan for the past medical debt.

So that is what our life looks like right now. I have had the last few weekends off work so it’s been nice to spend that time with Jordan. We have really been enjoying each other’s company. We have talked a lot about how our relationship and marriage has grown and how it is so much richer and fuller. I am not sure how to describe it exactly, maybe some thoughts for another day. I truly believe that we were meant for each other and I am so thankful to call him my husband. We are very hopeful for our future together.

Also, Happy First Day of Spring!