The last two days at the hospital were long and boring. Jordan
was not hooked up to anything, eating solid foods and still taking his medications
my mouth. He was mentally ready to come home on Sunday when I last saw him at
the hospital. But he knew that they wanted to keep him longer because he had
been running a low temperature for a few days and they wanted to check for an
infection. They also wanted to see how we did with solid foods and watch for
anymore bleeding.
He told me it was hard for him to sleep in the hospital for
obvious reasons so he tried to keep busy by doing puzzles and walking around
his floor and down to the gift shop.
When he did come home after 6pm on Tuesday he was so tired.
After trying to eat a salad because it sounded good he showed me his
prescriptions. We laid them out on his desk and divvied them out for the week;
it looked like a small pharmacy. He will be taking some for maintenance; like
vitamins and another for itching, some for several days like antibiotics, and
some to help with the pressure on his organs until he can get a transplant.
Today, Wednesday, he slept for almost 24 hours with some
bathroom breaks here and there and also to eat something. He will continue to
rest a lot and take it easy. He is still in a lot of pain. He will not be able
to work for a while and we are going to explore disability options.
We are going to try to do a soft foods/puree diet for a week
just to make sure his body continues to heal and only eat things that are easy
on his stomach.
We have our meeting with the liver doctor this Friday
morning. I will be taking the day off and going with him. We will be asking
specific questions about what to realistically expect going forward and to get
a clearer sense of our options. Please pray that we will have the wisdom to determine
what are the best steps to take right now for Jordan. Also pray that the liver specialist
would identify the best options for us.
It’s going to be a long road of recovery ahead and just
because he is home does not mean that this is close to being over. Pray for continued
perseverance and strength through this season.
Also pray for me. I have been riding the emotional
merry-go-round the last 10 days and trying to do a lot of things. Some days I have
energy and do things like get my car fixed and then there are other days were I
come home from work and just go to bed because I have no energy.
This week I have felt like I was getting sick but it could
be allergies, either way I don’t feel the best. And for those who know me I
have had back problems for a few years and that started up again so I basically
hurt all over.
Through it all I know it’s a season and that we will make it
through. Its times like this when I think to myself, “Hard is not bad, it’s
just hard.” That’s were I am at, it’s just hard.
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